Life is busy.... time to play catch up. AND WE have a lot to catch us on, so here it goes>>>>
We were released from the hospital on Sept. 2, Labor Day. Colin was very excited to come home!!! Matt and Katherine did an excellent job of decorating the house to welcome home Colin, he LOVED it. That evening we took him swimming for the first time in 2 months, he was so so excited, he really is an outdoors kid and has been pretty limited on what he could do.
Colin had been home ONE day before he had an accident where he dropped a statue on his head making a large gash. Matt took him to the doctor and he said that he could get a stitch or two but since it was in his hair, it would cover it up. So no stitches needed BUT a great scare for everyone. This kid is going to give me so many white hairs.
Colin went back to the doctor on Friday Sept. 6th, x-ray looked great and his sats were at 95! So we were able to lift his drink restrictions.. YEAH!!! No more of him begging for water and having to tell him no! ALSO we got to lift his NO FAT diet to LOW fat diet.... AWESOME! This opens up so many doors when it comes to food. You can find LOTS of LOW fat food! After 5 weeks of struggling with the no fat diet, Colin can finally have chicken, turkey bacon, turkey tacos & burgers!! This has REALLY REALLY helped his appetite INCREASE!! He is wanting to eat, asking to eat, and is eating!! We normally eat pretty healthy, so low fat is pretty close to what we already eat anyways and it's not strange tasting like NO fat food.
Saturday Sept. 7th, we went to my nephew's birthday party. They had a large bouncy with a waterside. The kids had a blast! They really needed that, time to just be kids and have some good old fashioned FUN!! It was so amazing to see Colin playing for 6 hours.. bouncing, running, getting wet and NOT turning blue, not out of breathe, not shivering, not trying to keep up with the other kids. All the stress, tears, hospital time, sleepless nights, tears (oh I mentioned that twice).. is ALL WORTH IT to watch him play like everyone ELSE. For his heart NOT to have to work SO hard at normal kid activities. THANK you God for watching over my son! Even though the fluid is a complication and is annoying, Colin's heart is working perfectly!
Friday Colin went in for a chest x-ray (right now he is going weekly to keep on top of this fluid problem), the chest x-ray showed a small amount of fluid building up, so we increased his lasix (diuretic) but for now are keeping everything else the same. He has another x-ray this coming up Wednesday to see if that helped. Pray that was what was needed and that we get this under control.
This weekend Katherine officially became a GIRL SCOUT. And I must be crazy as I am her troop leader. No one else volunteered and I can not stand for the awkwardness of everyone just starting at each other, so I raised my hand. I am excited about the quality girl time with my daughter and her friends, I think this will be a great experience for the both of us.
So in the last two weeks, we have just been trying to get to our normal life... spending time together, baking brownies (licking the bowl which is the best part), cheering on the Aggies and Texans, and having some fun quality time together. The last couple of months have been really hard, hopefully the hard times are behind us!