It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born.
One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you".
He reassures the scared little angel that everything will be okay, and that she is just going for a visit. She is still not swayed on this idea. So Jesus kneels down, and says, "How about if you leave half of your heart here with me and take the other half with you, will that be okay?"
The angel smiles and says, "I guess that will work". But the little angel is still a little scared. She asks, "Will I be okay with only half of my heart?" Jesus replies, "Of course you will, I have other angels there that will help out, and you will be fine."
Then Jesus gives the angel more details about his plan. He says, "When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family, play and laugh everyday. And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves."
Today is a very sad day. Wyatt Greeno lost his battle with HLHS last night, he was just 6 months old. My heart is broken, Wyatt IS a very special little guy to me. I "met" his mom Jillian online when she was pregnant with Wyatt. I assured her it was all going to be okay, I encouraged her to look at Colin and know Wyatt will be just like him. We religiously read each others blogs, commented on Facebook updates, we became friends who never met.
I had the PRIVILEGE to watch Wyatt grow up for 6 months and I am truly going to miss him. I will miss seeing Jillian's silly postings on facebook about his squishy cheeks and his love of Green Bay football. I will miss watching him grow.
My heart is broken for Jillian and her husband Lucas, who are wonderful parents having to go through the most horrible thing a parents can dream of. They love their son very much. They do not deserve this, no one does.
This morning I didn't want to take Colin to school, I wanted to just hold him, cuddle him all day, keep him close to me. It’s so hard to see a child pass away, but especially one that you feel a bond with. I am angry that we have to deal with CHD's, how unfair it is to our children who have to face this. I am scared today, I am scared about my son's and other HLHS children's future. I am so sad for my friend who is on the toughest journey of her life right now.
Some people have questioned why I get so involved with people I don't know. That I have enough on my plate without added stress. But I don't see it that way. I have friends who have kids with HLHS. I have friends to talk to about feeding issues, cardiology appointments, echos, chest x-rays, drainage tubes, level of activity for Colin that other people just can't understand.
My university I graduated from (Texas A&M) has a great quote that I thinks fit's a heart parents perspective to a tee.."From the outside looking in, you can't understand it. And from the inside looking out, you can't explain it." Texas A&M is known for it's traditions and often is described this way when people don't understand them. This is how I feel about being a heart mom. Most people can not understand the journey we take, and it's too hard to really explain what goes on to those to who do not live it themselves.
Rest in peace dear sweet Wyatt. You are loved by so many. May you now be a guardian angel to all the HLHS warriors you have left behind. Jesus has now made your heart whole again.