Tuesday, January 25, 2011

Wyatt Greeno HLHS 7/13/10 - 1/24/11

It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born.

One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you".

He reassures the scared little angel that everything will be okay, and that she is just going for a visit. She is still not swayed on this idea. So Jesus kneels down, and says, "How about if you leave half of your heart here with me and take the other half with you, will that be okay?"

The angel smiles and says, "I guess that will work". But the little angel is still a little scared. She asks, "Will I be okay with only half of my heart?" Jesus replies, "Of course you will, I have other angels there that will help out, and you will be fine."

Then Jesus gives the angel more details about his plan. He says, "When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family, play and laugh everyday. And when its time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves."

Today is a very sad day. Wyatt Greeno lost his battle with HLHS last night, he was just 6 months old. My heart is broken, Wyatt IS a very special little guy to me. I "met" his mom Jillian online when she was pregnant with Wyatt. I assured her it was all going to be okay, I encouraged her to look at Colin and know Wyatt will be just like him. We religiously read each others blogs, commented on Facebook updates, we became friends who never met.

I had the PRIVILEGE to watch Wyatt grow up for 6 months and I am truly going to miss him. I will miss seeing Jillian's silly postings on facebook about his squishy cheeks and his love of Green Bay football. I will miss watching him grow.

My heart is broken for Jillian and her husband Lucas, who are wonderful parents having to go through the most horrible thing a parents can dream of. They love their son very much. They do not deserve this, no one does.

This morning I didn't want to take Colin to school, I wanted to just hold him, cuddle him all day, keep him close to me. It’s so hard to see a child pass away, but especially one that you feel a bond with. I am angry that we have to deal with CHD's, how unfair it is to our children who have to face this. I am scared today, I am scared about my son's and other HLHS children's future. I am so sad for my friend who is on the toughest journey of her life right now.

Some people have questioned why I get so involved with people I don't know. That I have enough on my plate without added stress. But I don't see it that way. I have friends who have kids with HLHS. I have friends to talk to about feeding issues, cardiology appointments, echos, chest x-rays, drainage tubes, level of activity for Colin that other people just can't understand.

My university I graduated from (Texas A&M) has a great quote that I thinks fit's a heart parents perspective to a tee.."From the outside looking in, you can't understand it. And from the inside looking out, you can't explain it." Texas A&M is known for it's traditions and often is described this way when people don't understand them. This is how I feel about being a heart mom. Most people can not understand the journey we take, and it's too hard to really explain what goes on to those to who do not live it themselves.

Rest in peace dear sweet Wyatt. You are loved by so many. May you now be a guardian angel to all the HLHS warriors you have left behind. Jesus has now made your heart whole again.

8 comments:

Jenny Lincoln said...

Oh Jennifer... I just wrote almost an identical post. I am so devastated for Jillian and Lucas. It's just not fair.

Sherry said...

R.I.P. Angel Wyatt
So sad to hear this today. Praying for peace for his mom and dad.

I think it's wonderful that all of you 'heart moms' can talk and compare notes and support each other, whether in good times or sad times...

Give Colin an extra big kiss/hug from Grandma today, too...

Melissa said...

I ran and gave my girls big hugs this morning. I cannot imagine losing a child. I loved the story at the begining...it is hard to remember that our children are not ours but HIS and we are blessed for however long we get to enjoy them! Big hugs to you today!

Elaine said...

Jennifer, I'm so sorry to hear that Wyatt lost has battle. I've got tears streaming down my face for his family, your family, and my own sweet babies. I have my 20 week sono next Thursday and I know everybody gets excited to find out the sex, but I get so nervous about the real reason for the test after reading and following so many troubled pregnancies/babies. I totally understand the connection with other Mom's. I have about 3 or 4 blog mommy friends I've never "met" but truely consider real friends. The A&M quote is perfect for this situation and so many more. I will keep Colin in my prayers that he stays has healthy as can be as well as other CHD babies! He's just precious.

Kelly said...

I'm so sorry. I have tears in my eyes reading this. How very, very sad. As a parent the idea of losing your child is the worst thing you can think of. I'm so sorry for your and your friend's loss. I will keep Colin in my prayers and hope that his heart will always stay strong.

Jillian said...

Such beautiful words. Thank you so much. <3

sunshine said...

What devastating news, but such a compassionate post, jenn. Often in situations like this, people do not know what to say, you wrote from the heart and soul...

Lisha said...

I am just devestated for their family. I have prayed for them that the Lord will give them peace and strength and for all other HLHS/CHD families - that they may kiss their babies one more time and thank the Lord for the miracle he has given them.