EXPLANATION: Sometimes the fluid draining from the chest contains fat, lymph. If the pressure within the chest area is high after surgery these vessels can leak fat into the chest, a chylothorax.
WHAT IT MEANS: Starting tonight and for AT LEAST the next 6 weeks or more, Colin will be put on a STRICT low to no fat diet (they will discuss with us tomorrow) to help get rid of the fat that has leaked into the chest cavity. It does not slow down our process of going home, it is going to be a WHOLE new way of what he can and can't eat. He will be followed up through chest x-rays, once it is cleared up, we can introduce fat back into his diet.
TIMELINE OF GOING HOME: No time soon, Colin is still having too much output, it is slowly decreasing but not enough. I joked with doctor about next Wednesday and she kinda laughed and not in a good way. They are not concerned that he is draining slowly, it just happens to some kids and we have to wait it out.
He is getting one chest tube out tomorrow since it is barely putting out and it is a little red and irritated. The problem is they are going to squeeze us in sometime but he can not eat or drink after 4am in the morning and they might not get him in until the afternoon, so I am going to have one very pissed off 4 year old tomorrow who is going to be begging for food and water and I have to tell him no. Please pray that we get soon sooner than later!
It was a little hard to take the news today as Colin has been eating the BEST HE HAS EVER EATEN and LOVES food now and is wanting to eat. BUT the things he loves, the things he is eating is all stuff he will not be able to eat on this new diet. We have a meeting with the dietitian tomorrow to get more explanation of what he can and can not have and how to introduce this diet to a 4 year old. But I know some other mom's who have gone through this, so looking for them on advice on what worked well. Colin will loose weight on this diet, then we will have to work to get the weight back on him after this.
So a tough say but the good news is his heart is doing good and this just means a little harder recovery than expected.