ICU Update #1

Colin got settled into ICU today around 2pm today, we got to come up and see him around 4pm.  It was of course hard to see him but he looked so much better than his other surgeries and right off the back you can tell how PINK he is. For those that spend time with Colin or any pre-fontan kid, they are blue around the eyes, toes, and fingers. Colin in the last very few months has been turning more blue. Today, for the first time in 4 years, we have a child with PINK toes :)

Colin has been really wanting something to drink.. BADLY. He is on fluid restriction and that has caused some of his anger. It is so hard to see a kid BEG for water and you have to tell them no. After 2 hrs, he was able to suck water off a sponge, Poor Kid. They are now going to let him drink a little bit more.

They are going to start weaning him off the drug that is making him sleepy, so he can start to come out of this some. They have removed his arterial line in his groin. His fluid output in his chest tubes are looking good.

Plan for tomorrow is to hopefully get the arterial line out of his neck, get him to sit up, have him drinking and maybe try some food. We are looking at maybe getting into our own room by tomorrow night OR sometime Thursday.

Colin has been sleeping on and off. When he is not sleeping he is asking for apple juice, Capri Sun, AND water, and is not too happy with the answers given. He was first really angry by only getting to suck water off a sponge, but since that is his only choice, he has grown to love it and ask for it.

Matt and I did not get a room at the Ronald McDonald house, they were full. So we are trading off between sitting with Colin and sleeping in a chair on the cardiac waiting area. Can not wait to have our own room with a fold out bed.